Friday, December 30, 2011

Catch Up

I know I said after Christmas I was going to make this post but once again life got in the way. So in November Cole went for his 6 month MRI to look at the white matter again. My husband and I were hoping to get the news that it had improved and it was no longer a worry that Cole could have White Matter Disease. Unfortunately right before Thanksgiving we were told that there was no change in the MRI. Since we have a great neurologist she wanted us to send her the MRI to have the hospital she works at look at them again. Since there was no change I didn't rush this time to send the scans. Looking back I wish i did rush them out. We had our appointment in December to evaluate Cole's autism and I was also hoping to go over the scans and to see when his next MRI would be. Well at the appointment the doctor proceeded to tell us that she would be looking at his MRI that Friday and that she wanted to see where the cyst was. Apparently the report stated no change in MRI with cyst on brain. Cole's first MRI didn't show a cyst so this was just heart breaking to us. It meant that I had one more thing to add to my list of worries and things to watch out for. I still don't understand why the hospital Cole had the MRI at had not red flagged this so that his neurologist would look at this first. Thankfully the news came back that the cyst is not pushing on anything in his brain right now and that we would monitor it. His next MRI will be in a year but as I right now I am thinking of asking to have one done at the age of 3 for Cole which will be in 6 months. I wish I could blog and say the appointment went great and we got great news but it seems that we keep getting bad news or I should say undesirable news. The up side to the appointment is that Cole showed better eye contact and responded to his name the first time the doctor called it. I was so proud at that moment with him. We are also saying mama and dada a lot now. So that is the MRI update that i promised I would write. I remain positive that this will  all work out but I know that as a mommy I will continue to worry. Just a heads up for my readers Cole has an OT evaluation through EI on 16th of January. I am hoping to blog that day about it but if not the next day. I also plan to blog more for the new year. I connected this blog to a facebook page that I hope to add pictures of procedures and evaluations. My hope is that one day I will have helped another family that struggled to find answers. So my New Years resolution is to stay positive, blog more and try to appreciate the smaller things in life. What are your New Years resolution? Do you plan to make any this year?

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