Return

Well I seem to have taken time away from posting and just everything in life. I don;t know if I needed a break or if I just had nothing to say. So since I don;t remember the last thing I posted I figured I would update. Cole has regressed once again. His EI people believe that it was his motor planning that regressed and with that he lost his 2 words. I was sad but not enough to cry. I knew that this could happen but well I just hoped that it wouldn't happen. We went through a rough patch with all his therapy sessions. He would cry as soon as he saw his EI people and the therapy was just sad to sit through. He also became more attached to mommy if that is even possible. We have been able to get Cole in to out patient OT and PT and now we will have speech also. I tell you that every time i do an evaluation with Cole it breaks my heart. I get the reports and he is never close to what his age is. I would like for just one report for it to say he is at his age level or exceeded it. I hold hope for the future to one day get that kind of report. So Cole will finally be ready with outside services for when school starts.  We are also applying for SSI and DDD for help with Cole. It took a little whole for me to actually accept that Cole might need that help. Of course the paperwork is amazing. I feel like I will never get it done. The process just started and I plan to start blogging on that. I don;t know much but I would love to help anyone I can. Well hopefully I get back on to update and also let you know how the DDD paperwork is going. I hope everyone is doing good.

The Break is Over

I wanted to start by saying I took a break the last few weeks in hope to regroup from the home front issues. We spent a few weeks wondering what was going on with Cole along with having a bunch of testing done. Its funny how I will look at everything else that could be bothering Cole before looking at the problem of Autism. Well we finally got our answer which is that Cole has regressed. When y husband gave me the new I wanted to cry but my brain keep saying "You knew this would happen."  The day I found out I was at the dentist. I had planned to speak to his EI lady but had to leave in the middle of session for my dentist appointment. I figured I would speak to her the next day about it but she beat me to the punch. After the news I knew I had to take a closer look at what was going on at home and what I could do that might help Cole more. I tend to find ways to make my days busier then they need to be. I will pick up extra projects, do a million errors or just spend the day running. I decide that i needed to step back from almost everything. I knew i couldn't step back from work and Cole;s therapy but everything else would wait. So that's why I took a break from the blog and also from my social meet up group. My family is finally in a better spot as fair as getting back in the step with therapy and just having some down time with Cole. We changed our therapy sessions to involve my husband or myself to help Cole with demands. We finally had his OT appointment and we started the school meetings. My hope is to actually get Cole prepared for school with no more regression. So that is the update and although my hope was to blog more I feel like I might only be able to blog once a week. If i can do more I plan to but first will be trying to get Cole back to where he was. So how is everyone else doing? Is everyone ready for Easter?

Update of the past few weeks.

I am not sure when my last post was but things have been so crazy. I have been picking up some extra hours at work and trying to keep life straight at home. Over the past few weeks Cole has been off his game. He has been acting abnormal and started to worry me. We had times where he wanted no one but mommy to touch him, he wants to be held and not walk like normal, we haven;t heard mama or dada from him in about a month and his sleep has been off. We were able to get him in the doctors last Monday to discuss our concerns and hope for an insight of what might be going on. We agreed to try an antibiotic since 2 weeks before his appointment he had a fever for 2 days and that was it. His doctor wanted to make sure that the infection didn't linger. We agreed to give the meds 5 days and we would see if that helped. Unfortunately it seemed that nothing changed and then next thing I know he is holding his head and putting his fingers in his ears for long periods of time. This was unlike him and started to make me wonder if he was getting headaches from the cyst on his brain. Well Friday of that week came and I explained what new stuff was happening and to be on the safe side she admitted us through the ER for a CAT Scan. Thankfully the hospital visit wasn't horrible expect that we did the CAT Scan without sedation. I was good not to have to sedate Cole but was hard holding him while he cried so much.  The CAT Scan came out fine and we were off from there. I was glad that I no longer had to worry about the cyst but wonder what could have him acting weird. I continued keeping his schedule since we don't have a great one but wanted him to have some normal in his life as possible.  Come Sunday night after having a play date it seemed Cole had a stomach virus. So I know why Sunday he was not himself but we still haven't had any success with anything else. I did put a call into his neuro doctor. Hopefully she will shed some light onto what is going on. Has anyone else been through this? Do you tend to blame something in else in life before looking at the real problem?

Update March 2012

Well its seems impossible for me to be able to blog lately. I am either working or running around doing a million things and have yet to figure out how to blog on the tablet we got. Maybe its just that I don't type as fast as I would like too. The last couple of weeks have been like most therapy for Cole, work for me and just family drama along with trying to get Cole some play dates. We did do storytime at the library for kids with special needs. Cole loved the fact that the room was big and he could run laps. I did get him to draw a picture with the other kids so I guess I should feel lucky. Cole has also had some off days where he is sleeping a lot more almost like when he is sick and it seems like he is running a fever but not running one. I am not sure what is going and if it continues I plan to take him to the doctor. I just hate to take him since he is not a fan of the doctors since his EEG.  We also had a speech consult for this month and we plan on signing a lot more with Cole which means I need to start learning more sign language. I rented some DVDs from the library and need to try and make some time to watch and learn. Has anyone had to learn sign language for their little one? What does you days normally look like? Do you ever feel like you need more time in your day? I know this last question almost everyone feels whether you have a special needs child or not. I wish I had a better scheduled day so that I have time to do everything. Maybe one day I will figure that out. Also how did you get yourself on a schedule with your child if they need it?

The week begins

Well Last week I had a sick child and have yet to figure out what made him sick. He ran a fever for about 3 days. He refused to eat or drink so it took a lot for us to get some kind of fluid in him. After having a rough night where Cole was up every 2hours we finally woke up back to normal. He was ready to eat as much as we would give him and couldn't get enough fluids in him.  Needless to say I was happy to have a happy and not sick child again in my apartment. Of course we were better for the weekend and that means we want to go out. I was thankful that my father had a free day and Cole was able to spend Sunday with him. I got to see my son and father enjoy hanging out together and I got to have an adult conversation with my step mom. I can say that after spending time with my father Cole went to bed earlier then normal and slept in this morning. It was a great day and night for us. Hopefully I will be able to start Cole on an earlier bed time soon. I would also like to get Cole in his own bed and a lot of other things. I have a list a mile long of things I would like to do. Hopefully this week I can we will get through a whole week of his therapy, and possible make a picture schedule up. I don;t know if it will work but I am looking for anything that could help transition easier. So do you have a list of things you need to get done? What is at the top of your list of things to do?

Ankle weighst and PT

Cole has his new 1lb ankle weights. He loves them so much he will bring them to you to put on. His first day was a little rough since He didn't want to do his EI and we added his ankle weights but after they were on a little he forgot about them.  He wore them only for EI because he had PT later that day. His PT lady loved his new weights also and said they would be perfect for him. Later that day I let Cole play with the ankle weights and then I put them on my ankles. I wanted him to see how great they were. After playing with them for a little and mommy wearing them Cole decided that he wanted to wear them. Since Tuesday Cole has brought me his weights to put on him. I am so proud that he is doing well with them and am thinking we will have to work on getting 2lb weights for him.  He also figured out how to slide them off his ankles. I guess I should have seen it coming but it only took him 3 days to figure it out. Hopefully this doesn't start the trend of him taking them off. So today I have 2 questions for everyone. One is how many of you have weights for your child or weighted items like a blanket? Second is how many people have an IPad or Tablet to use with their child? I am looking into a tablet for Cole to use which will be a blog for another day. Have a great day.

Cole meets the OT

I would like to start off saying Cole has a wonderful Early Intervention team. I don't know what we would do without Noreen and Melissa. Noreen arranged for Cole to have a session with his OT therapist today. We had her here a couple times before on a consult but its been awhile since she was here. So today we had a consult for Ot and were able to reintroduce Cole to his OT therapist. I have to say the session went well and I got some great ideas. We are now doing the brush therapy.I don;t know if anyone else is trying this but its pretty cool. They gave us a square brush that is not rough and you use it to brush against his back, arms, hands, legs and feet. I was told to try and do this every 2 hours but of course we have yet to have time. Today we had EI, PT and then we had to run to the store. Cole decide when we got home he wanted lunch and a nap. I am hoping that tonight I might be able to get some time in tonight for this. I was also given the idea about a bean play area where I can use dry beans and hide some small toys in it. Cole played at PT with this today and loved it. So how many people have therapist that they can't imagine not having in there life? I know its weird to ask but I can't imagine not having Noreen and Melissa in Cole and my life.